Monday, January 26, 2015

Kawasaki Disease Awareness Day


Melissa was diagnosed with Kawasaki Disease  (KD) in 1984
when she was eleven years old.  It was nearly three weeks before her KD was diagnosed, 
after a week each in two different hospitals, and being sent home with a 
"fever of unknown origin" or FUO. 
She was an extremely sick little girl.  
It was a very difficult time of my life, as her mother,
 but I will spare you the details. 

The cause of Kawasaki Disease is unknown.
 There are no tests for KD. 
The patient is diagnosed after going through the stages 
of the various symptoms. 
Melissa was the sixth child in the state of Kentucky to ever be diagnosed,
and at age eleven, she was older than most KD patients. 
Many cases were misdiagnosed.
After her diagnosis, Melissa returned to the hospital for further tests, 
and it was concluded she had multiple coronary aneurysms as result of the KD.

Fast forward thirty years:
 Most of the long-time followers of this blog 
know that Melissa underwent her 2nd open heart double by-pass 
surgery on October 30, 2013.
The first one was when she was a junior in college at age 20.  

Fortunately, now there is a treatment for Kawasaki Disease 
IF it is diagnosed within a few days of the onset of the illness.  

I am observing KD Awareness Day on January 26 on this blog
to inform others of the importance of research and awareness of Kawasaki Disease.
Currently, approximately 4200 children in the USA are diagnosed each year. 

Below:
Melissa today 

6 comments:

Ruth W said...

Thanks for this post...a disease I had not heard of before. I am as dedicated to Parkinson's Disease awareness. I am so sorry to hear that you, your family and Melissa have/are dealing with this. There is nothing more difficult than your child being ill. I will be praying for her, and support the cause.

Miss Merry said...

I had heard of this disease but had not idea that your family was affected. I cannot imagine what you and your family went through, both before and after diagnosis. It is good to hear that today it can be diagnosed so much faster. Prayers to Melissa.

Patsy said...

Thank God Melissa is happy and doing so well!

Angela McRae said...

I saw this mentioned elsewhere today and immediately knew what Kawasaki Disease was thanks to you! So glad Melissa's outcome was such a happy one--and may it ever be! :)

Judith @ Lavender Cottage said...

I have not heard of KD before but am thankful your daughter is looking happy and healthy in her photo.

Marilyn said...

It is so difficult to see your children at any age go through severe health issues. Melissa is looking good in that last picture. I hope she is doing well now.

 

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